Does your Child have a Disability?

If you got to this article, chances are you are concerned about your child development. I am going to be honest, if you think there is something wrong, chances are there is. I want you to remember some key points here

1 – You are not alone, millions of parents in the United States have been where you are

2 – Don’t compare your child to other children. All children go through stages of development differently, some kids need a push, some kids require more intervention. Every child is different and all you can do is support your child.

3 – This is probably the most important – don’t listen to other people’s opinions. 9 times out of 10 unless their child has gone through what your child has gone through, they are probably not the best source of information/support.

What you should do if you suspect your child has a disability, talk to your pediatrician, ask for their advice and referrals. If your doctor brushes you off, get a second opinion, or seek a evaluation on your own.

Here is where your child’s age and state of residence really comes into play. If you live in New York City, the Board of Ed has resources and services for children as young as infancy, but if you live in a state like Texas, your child’s disability is handled through private healthcare services till your child is of age to receive services through your school district. This can be costly and scary. So always start with your state education agency to find out what age they can help evaluate your child. If your child is too young for public school services, I recommend reaching out to your health insurance company and get information about what evaluations and services are covered, what your co-pays will be and what your max out of pockets are. If your child meets the age for public school services, reach out to your district and start the process to have your child evaluated. (see my article “Getting Your Child Evaluated for Services in your School District)

Does a diagnosis matter. Well yes and no. Yes, the diagnosis matters so you can completely understand what your child is going through, what to expect, how to help, and projected outcomes. No, in the matter that you love your child and the best you can do is get the services and support your child needs for the symptoms/behaviors they are exhibiting. Some parents get hung up on the diagnosis they lose site of the treatment. Kids with the same diagnosis at the same age may require completely different treatment plans. And don’t be surprised if the diagnosis changes, it happens especially in kids under 3, what they diagnosed as a speech delay could be Non-Verbal Autism or Childhood Apraxia of Speech that they couldn’t diagnose till your child was a little older and exhibiting other symptoms.

While you’re going through the evaluations and testing remember to not let it take over your life or your happiness. It’s hard, and I write from having the experience of two children with additional needs. Celebrate the wins, no matter how big or small. When talking to doctors, therapists, SLPs, OT’s and so forth, take notes and don’t be afraid to ask questions. I will tell you the best thing I got out of the process was meeting other parents while in waiting rooms, Therapy sessions, or sensory events because it made me realize I was not alone, and neither were my children. The world has changed for the better, things aren’t what they use to be, and kids with disabilities are accepted.

I wish you luck on your journey!